Logo Fondazione
Luigi Villa Foundation
     
   
   
   
   
   
   
     
     
     
     
     
 

 

 

 

 
 
 
 
 
links
 
www.isth.org
 
www.rbdd.eu
 
www.rbdd.org
 

 

 

 

 
News
 

Rare Disease Day 2012

February 29

rdd2010

rarediseaseday.org

 
 
Hemophilia 2010 Congress
The Hemophilia 2010 World Congress will be held in Buenos Aires, Argentina, from Saturday, July 10 to Wednesday, July 14, 2010
 

RE(ACT) CONGRESS 2012

The congress will bring together world leaders and young scientist from university and industry in Stem Cells, Cell Biology, Gene Therapy, Human Genetic and Therapeutic Applications to present cutting edge research, to discuss results and to exchange ideas.

Congress goals

  • Promote research on rare and orphan diseases among the general public, industry and policy makers
  • Bring together researchers and their knowledge
  • Helping the understanding of other more common diseases
  • Encourage clear insights positions identifiable from the scientific community in university and industry

Main topics

  • Gene and Cell Therapy; Stem Cells
  • Diagnostics
  • Therapeutic Applications
  • Genomic Disorders

Scientific disciplines involved

Autoimmunity, biochemistry, cell biology, dermatology, endrocrinology, gastroenterology, gene therapy, human genetic, hematology, infectious diseases, inflammation, molecular and cellular biology, neuroimmunology, oncology, orphan drugs, pathology, pharmacology, primary immune deficiency, rheumatology, transplantation, virology.

RARE IS COMMON

“What we learn from rare disorders often has profound consequences for our understanding of more common conditions”. Francis S. Collins (M.D., Ph.D., NIH Director).

DOWNLOAD THE POSTER OF THE RE(ACT) CONGRESS 2012

 

 

proraris -->>

rare disease Switzerland

Association ProRaris
Chemin de la Riaz 11
CH-1418 Vuarrens

Last Updated on Friday, 03 February 2012 11:17
 
 

june 2010

 
56th Scientific and Standardization Committee (SSC) meeting of the International Society on Thrombosis and Haemostasis (ISTH)

On May 22-25, 20010, 56th Scientific and Standardization Committee (SSC) meeting was held inCairo, Egypt .

Prof. Flora Peyvandi, from the University of Milan, presented the progresses of the European Network of Rare Bleeding Disorders (EN-RBD) project and the preliminary results obtained using a bleeding score system, specifically designed for RBDs, during the

Scientific and Standardization Committee (SSC) on Factor VIII and Factor IX

Scientific and Standardization Committee (SSC) on von Willebrand factor

Moreover Prof. Flora Peyvandi presented data on miscarriages in women affected with RBDs, during the

Scientific and Standardization Committee (SSC) on Women

 
 
2012 © L.Villa Foundation